The Rare Skin Conditions Society of Singapore (RSCS) and DEBRA Singapore will host the “Skin and Kin” Gala on 2 May 2025, marking the launch of “The Skin We Wear,” a book that shares personal stories of individuals living with rare skin conditions. The event, held under the patronage of Singapore’s First Lady, Jane Yumiko Ittogi, aims to raise awareness and foster empathy for those affected.
The book, co-created by RSCS, features narratives and portraits that reveal the often-invisible battles faced by individuals with rare skin conditions. “The Skin We Wear is an apt and bold expression of dignity,” said Ittogi, emphasising the need for deeper understanding and empathy.
RSCS, founded to support individuals with rare genetic and chronic skin conditions, collaborates with medical professionals to improve diagnosis and care. DEBRA Singapore, part of a global network, focuses on Epidermolysis Bullosa (EB), a painful skin disorder. Both organisations advocate for inclusion and better healthcare.
Prof. Durreen Shahnaz, co-founder of RSCS, shared her personal connection: “As a mother of a child with Harlequin Ichthyosis, I know the anguish of watching your child struggle with a condition that few understand.” The book, she said, is a collective voice affirming the importance of belonging and visibility.
The gala will also honour healthcare professionals dedicated to improving care for rare skin conditions. Dr. Mark Koh, co-founder of RSCS, highlighted the progress made: “What we’ve built is a united medical front… because we believe every patient deserves dignity, understanding, and access to expert care.”
The event underscores the importance of systemic change and community support, aiming to make the invisible visible.
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